Eating Disorders Center for Treatment and Research

Parent Advisory Committee

Introduction

Family PhotoThe Parent Advisory Committee is a group of parents with children that are recovering from an eating disorder. They have completed the UCSD Adolescent Treatment Program for Eating Disorders and would like to provide support to new parents as they enter the program.

Welcome Message to Parents

“We know how difficult it is to be seeking treatment for your child suffering from an eating disorder. Although every journey is vastly different and unique we have all taken many of the same steps, had the same questions and concerns. The Parent Advisory Committee for UCSD Adolescent Treatment has set out to support new parents maneuvering the many challenges that are brought on by this disease.”

Mentoring Program

Upon entry to the program, each new parent will have the opportunity to be matched with a parent mentor. The mentoring program is voluntary, and parents may join or leave at any time. The parent mentor will offer support to the new parent throughout their journey in the program. To join, please contact the program director Roxanne Rockwell via email. Please read below and click on the links to learn more about the background and experiences of the parent mentors.

Personal Experiences of Mentor Parents

“Our daughter was diagnosed with Anorexia Nervosa in 2009. She was 14 years old and the diagnosis took us by surprise. During hospitalization we were fortunate to have been referred to the UCSD Eating Disorders Program. Our daughter participated in the Research on Interventions for Anorexia Nervosa (RIAN) research study, which provided the basic structure for their current Adolescent Eating Disorder program.

We were able to use the Maudsley Method to refeed her at home with the guidance of the medical/clinical staff at UCSD. She was in the research study for 9 months and during that time we were able to restore her to 85% of her goal weight. The most challenging aspect of using the Maudsley Method for my family has been the duration of our daughters continuing recovery. Refeeding is only one part of the recovery process. The emotional and mental recovery takes time and patience. Our success is that after three years, we finally feel that we have our daughter back. To date, we continue to work with her psychiatrist and therapist to reverse the effects that occurred with the eating disorder. Every child is unique and their treatment will be as well. For our daughter the Maudsley Method has truly given our family the education and support to help her move forward in hopes of a full recovery. You never know your true strength of commitment, until you are faced with saving a loved one.”

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“We were fortunate our daughter was diagnosed quickly and that our pediatrician referred us immediately to UCSD. We experienced improvement from day one using the Maudsley method and removing any choice for her as to whether or not to eat. Calm (for the most part) demeanor from us and the unwavering demand that the food be eaten and the weight regained was what we strove for. more

“We are fortunate to live in San Diego County, only about 25 minutes from the UCSD Eating Disorder Center. This became an important detail when we found ourselves seeking treatment for our daughter who suffers from Anorexia Nervosa. She was diagnosed in November 2011 at the age of 15, admitted to us that she had been restricting since September, but has been underweight pretty much all through puberty. more

“We live in Riverside County and our daughter was first diagnosed with EDNOS at the age of 16. With some therapy, she seemed to do very well. Just about 4 months later during the summer she began restricting and lost a large amount of weight in a short time. After seeing a specialist, art therapist, nutritionist, psychiatrist she began eating but then developed bulimia. It was then that her previous treatment team recommended UCSD Adolescent Treatment program. more

Our family resides in San Diego County. In May of 2011, our 14 year old 9th grade daughter suddenly became a strict vegetarian. I wanted to respect her decision thinking it was possibly a phase she was going through. After a few months and some weight loss I decided to take her to her pediatrician. I was concerned with her going away to sleep away summer camp for 3 weeks and her not eating correctly. I wanted the pediatrician to educate my daughter on what a healthy vegetarian diet consisted of. more